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Meeting summary for Children’s Pathway Parent and Carer Engagement Group Meeting #5

The Neurodegenerative Palliative Care and Rare Diseases Advisory Group (NPRAG) met on 28 May 2025.

Jane, the NDIA Co-Chair from the Children’s Taskforce, introduced Veronica as the Parent Carer Co-Chair of the Group. The role of the Co-Chairs is to ensure everyone has a say and to keep meetings on time and on topic.

Jane, the NDIA Co-Chair from the Children’s Taskforce shared some background on the new NDIS early intervention pathway for children younger than 9 (the new pathway), including what is in scope and out of scope of the design of the new pathway.

The Participant Pathway Experience Co-design Working Group meeting held 6 May 2025.

We recognise the importance of sector-led co-design. The NDIA has engaged People With Disability Australia (PWDA), Disability Advocacy Network Australia (DANA), Carers Australia and National Disability Services (NDS) will each deliver a series of co-design sessions on improving our risk assessment and safeguarding processe