Evidence of disability or developmental delay for children under 7 years of age

What to provide with your child’s Access Request Form

To allow the National Disability Insurance Agency to determine whether your child meets the early intervention or developmental delay requirements, you will need to provide evidence of your child’s permanent disability or developmental delay to support their access request. This includes information on what your child’s condition is, how long it will last and its impact on their life.

You can provide evidence of your child’s disability or developmental delay by having their treating doctor or specialist complete the Professional's Report section in Part F of the Access Request Form, the NDIS Supporting Evidence Form or you can provide the same information in a different format, such as copies of existing assessments and reports. The information must be provided with the Access Request Form.

If you choose not to use the the Professional's Report section in the Access Request Form or the NDIS Supporting Evidence Form it is important that you make sure the information you provide contains the same information that the form collects.

If you are not sure whether you have enough information to support your child’s access request, or you have trouble getting the information, we may be able to help you. See below for information on how to contact us.

Diagnosis

You must provide us with evidence of the diagnosis of your child’s disability from your child’s treating doctor or specialist.

Part F of the Access Request Form and the NDIS Supporting Evidence Form collects this information, or you can give us other written evidence of your child’s diagnosis from their treating doctor or specialist. This needs to include information about any treatment/s your child is receiving.

Please note: for a child to meet the developmental delay requirements for the NDIS they must be aged under 6 years. Further information on the developmental delay is available in the Operational Guideline – Access – Early Intervention Requirements.

Evidence of the impact of your child’s disability or developmental delay for children under 7 years

If your child has a condition we have already identified as always resulting in permanent impairment and substantially reduced functional capacity, or as always benefiting from early intervention, then we do not require any further information. A list of these conditions is further down this page.

If your child’s condition is not on the list of ‘Permanent impairment/functional capacity – no further assessment required’ you must provide evidence of the impact of your child’s condition on their life, including any impact on their mobility, communication, social interaction, learning, self-care and self-management.

You can provide this information by getting your child’s specialist or an allied health professional to complete the Professional's Report section in Part F of the Access Request Form, the NDIS Supporting Evidence Form or you can provide us with other written evidence from their specialist or a health professional.

‘A health professional’ includes a physiotherapist, an occupational therapist, speech pathologist, a psychologist or a nurse.

‘Other written evidence’ could include existing assessments or reports which were prepared by a specialist or allied health professional that provide the equivalent information on the impact of your child’s condition on their life.

Submitting evidence

The evidence about your child’s disability or developmental delay must be submitted with you access request when required by the NDIA. Their access request will not be considered complete unless we have received all the information we need. We will use the information about your child’s disability or developmental delay to help us determine whether your child can become a participant in the NDIS.

More information

If you need help understanding the information on this page, need more information or need assistance with providing evidence, please Contact us.

Permanent Impairment/Early intervention, under 7 years – no further assessment required

Synonyms for conditions are also shown (e.g. condition/ synonym/ synonym)

  1. Conditions primarily resulting in Intellectual/ learning impairment
    • Intellectual disability
    • Global Developmental Delay
    • Autism Spectrum Disorders (diagnosed by a specialist multi-disciplinary team, pediatrician, psychiatrist or clinical psychologist experienced in the assessment of Pervasive Developmental Disorders/Autism Spectrum disorders, and assessed using the current Diagnostic and Statistical Manual of Mental Disorders (DSM-V) diagnostic criteria)
      • Autism

      • Asperger’s disorder

      • Childhood disintegrative disorder

      • Pervasive developmental disorder - not otherwise specified /Atypical autism

    Chromosomal abnormalities resulting in permanent impairment

    • Aicardi syndrome
    • Aicardi-Gouti res syndrome
    • Angelman syndrome
    • CHARGE syndrome
    • Cockayne syndrome/ Types I and Type II / Cerebro-oculo-faciao-skeletal (COFS) syndrome/ Pena Shokeir syndrome Type II / Weber-Cockayne syndrome/ Neill-Dingwall syndrome
    • Coffin-Lowry syndrome
    • Cohen syndrome
    • Cornelia de Lange syndrome
    • Cri du Chat syndrome
    • Dandy-Walker syndrome
    • DiGeorge syndrome/ 22q11.2 deletion syndrome/ Velocardiofacial syndrome/ Shprintzen syndrome/ Conotruncal anomaly face syndrome
    • Down syndrome
    • Edwards syndrome/ Trisomy 18
    • Fragile X syndrome
    • Kabuki syndrome
    • Lesch-Nyhan syndrome/ Nyhan’s syndrome/ Kelley-Seegmiller syndrome/ Juvenile gout
    • Leigh syndrome/ Leigh’s disease/ subacute necrotizing encephalomyelopathy
    • Menkes disease
    • Patau syndrome/ Trisomy 13
    • Prader-Willi syndrome
    • Rett syndrome
    • Seckel syndrome/ microcephalic primordial dwarfism/ Harper’s syndrome/ Virchow-Seckel dwarfism
    • Smith-Lemli-Optiz syndrome
    • Smith-Magenis syndrome
    • Sturge-Weber syndrome
    • Trisomy 9
    • Tuberous sclerosis
    • Williams syndrome
    • Wolf-Hirschhorn syndrome

    2. Conditions primarily resulting in Neurological impairment

    Systemic atrophies primarily affecting the central nervous system:

    • Friedrich’s ataxia
    • Hereditary spastic paraplegia/ Infantile-onset ascending hereditary spastic paralysis/ L1 syndrome/ spastic paraplegias types 2 and 11
    • Louis-Bar syndrome/ Ataxia-telangiectasia
    • Niemann-Pick disease (Types A and C)
    • Progressive bulbar palsy of childhood/ Fazio-Londe disease

    The following spinal muscular atrophies:

    • Spinal muscular atrophy Type I/ Werdnig Hoffmann disease/ infantile SMA
    • Spinal muscular atrophy Type II/ Dubowitz disease
    • Spinal muscular atrophy Type III Kugelberg-Welander disease/ juvenile SMA
    • Spinal muscular atrophy lower extremity dominant/ SMA-LED
    • X-linked spinal muscular atrophy

    Extrapyramidal and movement disorders:

    • Hallervorden-Spatz syndrome / Pantothenate kinase-associated neurodegeneration (PKAN)/ neurodegeneration with brain iron accumulation 1 (NBIA 1)

    Other degenerative diseases of the nervous system:

    • Alpers disease/ Alpers syndrome/ Grey-matter degeneration/ Progressive sclerosing poliodystrophy/ Progressive infantile poliodystrophy

    Demyelinating diseases of the central nervous system

    • Adrenoleukodystrophy / X-linked childhood cerebral form
    • Alexander disease
    • Canavan disease
    • Krabbe disease/ Globoid cell leukodystrophy
    • Pelizaeus-Merzbacher disease

    Episodic and paroxysmal disorders

    • Lennox-Gastaut syndrome/ Lennox syndrome
    • West’s syndrome

    Polyneuropathies and other disorders of the peripheral nervous system

    • Dejerine-Sottas disease/ Dejerine-Sottas syndrome/ Dejerine-Sottas neuropathy/ progressive hypertrophic interstitial polyneuropathy of childhood/onion bulb neuropathy
    • Infantile Refsum disease

    3. Conditions primarily resulting in Physical impairment

    • Amputations
    • Diamond-Blackfan anaemia
    • Epidermolysis bullosa
    • Harlequin type icthyosis
    • Hay Wells syndrome/ ankyloblepharon/ ectodermal dysplasia/ clefting [AEC] syndrome
    • Joint or limb deformities resulting in impaired mobility
    • Juvenile arthritis/ Stills Disease
    • Osteogenesis imperfecta
    • Sjogren Larsson syndrome

    Diseases of myoneural junction and muscle

    • Congenital muscular dystrophy
    • Congenital myotonia / Thomsens disease/ Becker myotonia
    • Distal muscular dystrophy
    • Duchenne muscular dystrophy
    • Emery-Dreifuss muscular dystrophy
    • Facioscapulohumeral muscular dystrophy
    • Myotubular myopathy
    • Oculopharyngeal muscular dystrophy
    • Paramyotonia Congenita

    Cerebral palsy and other paralytic syndromes

    • Cerebral palsy
    • Diplegia
    • Hemiplegia
    • Monoplegia
    • Paraplegia
    • Quadriplegia
    • Tetraplegia

    4. Conditions resulting in Sensory and/or Speech impairment

    • Permanent blindness in both eyes, diagnosed and assessed by an ophthalmologist as follows:
      1. Corrected visual acuity (extent to which an object can be brought into focus) on the Snellen Scale must be less than or equal to 6/60 in both eyes; or
      2. Constriction to within 10 degrees or less of arc of central fixation in the better eye, irrespective of corrected visual acuity (i.e. visual fields are reduced to a measured arc of 10 degrees or less); or
      3. A combination of visual defects resulting in the same degree of visual impairment as that occurring in the above points.
        (An optometrist report is not sufficient for NDIS purposes.)
    • Deafblindness confirmed by ophthalmologist and audiologist and assessed as resulting in permanent and severe to total impairment of visual function and hearing
    • Deafness/hearing loss – a 45 decibels or greater hearing impairment in the better ear, based on a 4 frequency pure tone average (using 500, 1000, 2000 and 4000Hz)

    5. Conditions resulting in multiple types of impairment The following mucopolysaccharidoses:

    • Aceruloplasminemia
    • Addison-Schilder disease/ Adrenoleukodystrophy /
    • Albinism
    • Arginosuccinic aciduria
    • Aspartylglucosaminuria
    • Cerebrotendinous xanthomatosis/ cerebral cholesterosis
    • Congenital cytomegalovirus infection
    • Congenital hypothyroidism
    • Congenital iodine-deficiency syndrome /cretinism
    • Congenital rubella syndrome
    • Galactosaemia with long term learning disabilities and neurological impairment
    • Glycine encephalopathy/ non-ketotic hyperglycinaemia
    • GM1 gangliosidosis
    • Hartnup disease
    • Homocystinuria
    • Lowe syndrome/ Oculocerebrorenal syndrome
    • Mannosidosis
    • Menkes disease
    • Mucolipidosis II / I-cell disease
    • Mucolipidosis III / pseudo-Hurler polydystrophy
    • Mucolipidosis IV
    • Neuronal ceroid lipofuscinosis
    • Niemann-Pick disease
    • Phenylketonuria
    • Pyruvate carboxylase deficiency
    • Pyruvate dehydrogenase deficiency
    • Sialidosis
    • Sulfite oxidase deficiency
    • Hurler syndrome/MPS1-H
    • Scheie syndrome/ MPS 1-S
    • Hurler-Scheie syndrome/ MPS 1 H-S
    • Hunter syndrome/ MPS II
    • San Fillipo syndrome/ MPS III
    • Morquio syndrome/ MPS IVA
    • Maroteaux-Lamy syndrome/ MPS VI
    • Sly syndrome/ MPS VII

    The following lysosomal storage disorders:

    • Gaucher disease Types 2 and 3
    • Niemann-Pick disease (Types A and C)
    • Pompe disease
    • Sandhoff disease (infantile form)
    • Schindler disease (Type 1)
    • Tay-Sachs disease (infantile form)

    Congenital conditions – cases where malformations cannot be corrected by surgery or other treatment and result in permanent impairment: Chiari malformation/Arnold-Chiari malformation

    • Congenital absence of limb(s)
    • Congenital hydrocephalus
    • Fetal alcohol syndrome
    • Fetal hydantoin syndrome
    • Microcephaly
    • Spina bifida
    • VATER syndrome (VACTERL association)