Participants, Carers and Families

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Projects funded under this outcome focus on building awareness and understanding of the scheme amongst people with disabilities and families. Current projects are listed below.

The Disability Support Organisation (DSO) Capacity Building Project

This project is designed to achieve the outcomes outlined in the Sector Development Fund Strategy.

The NDIA has funded a number of grassroots community organisations to act as Disability Support Organisations. Each DSO will work with people with disability and their families and carers to make the most opportunities presented by the NDIS and engage effectively with the scheme.

Each DSO will facilitate and support up to 20 local peer support or mutual support groups. The support groups will provide information, resources and build community networks between participants and with others. The type and structure of the local support groups will be determined by DSOs in consultation with the NDIA. Local support groups will respond to local needs, conditions and circumstances. The goals of the local support groups will be to build the capacity of people with disability and their families to:

  • Exercise choice and control
  • Effectively engage with the NDIS
  • Effectively engage with mainstream programs, services and activities
  • Increase opportunities for independence, self-management and community inclusion

The organisations selected for this first stage of the DSO capacity building project are listed below. The NDIA looks forward to working with them on this exciting project.

  • Aboriginal Disability Network NSW
  • Down Syndrome Association of NSW
  • First People’s Disability Network (Australia)
  • New South Wales Council for Intellectual Disability
  • People with Disability Australia Incorporated
  • Physical Disability Council of NSW
  • Queenslanders with Disability Network Ltd
  • Families 4 Families Incorporated
  • Speak Out Association of Tasmania
  • Amaze (Autism Victoria)
  • Association for Children with a Disability
  • Carers Victoria
  • Down Syndrome Association of Victoria
  • VALID Inc
  • Victorian Mental Illness Awareness Council
  • Developmental Disability WA
  • Down Syndrome WA
  • People with Disabilities (WA) Inc

The NDIA will provide contact details for each of the organisations shortly for people with disability and/or their families and carers interested in participating in local groups.

If you would like more information about this project please email

Capacity Building – Carers and Families

Carers Australia will develop a peer support program for families and carers in trial sites, identifying and training peer mentors, developing resources and running a series of workshops, discussion forums and webinars to support families and carers as they move into the scheme. For more information contact: Carers Australia,

Capacity Building– People with Disability and Families

The Australian Federation of Disability Organisations (AFDO) will create an information “clearinghouse” to ensure improved understanding of the principles which underpin the NDIS and its operation amongst people with disability and their families as well as the organisations that support them. AFDO will develop and distribute targeted resources for people with disability and run a training program. For more information contact: Matthew Wright, AFDO,

Capacity Building – Indigenous Australians

The First People’s Disability Network will be working with urban, regional and remote communities to raise awareness of the NDIS and assist Indigenous people with disability, and their families and carers, to understand and use individual packages effectively. For more information please visit the First People’s Disability Network website.

Capacity Building – Mental Health

Mental Health Australia (formerly the Mental Health Council of Australia) will:

  • Work with state and territory community mental health peak bodies and mental health providers to build understanding of the NDIS within the mental sector, and to assist providers to transition to the future funding environment.
  • Work with people with psychosocial disability and their families and carers to raise awareness and understanding of the NDIS, and encourage consumer and carer networks and champions to assist others to exercise greater choice and control through the NDIS.
  • Undertake work on priority issues facing the mental health sector, including data capacity, workforce and supported decision making, to help align existing psychosocial disability supports with the NDIS model.

For more information please contact MHA on 02 6285 3100, email or visit the Mental Health Council of Australia’s website.

Early Intervention Best Practice Guidelines for parents and service providers

Early Childhood Intervention Australia is assisting the NDIA with two projects

i) the compilation, promotion and development of best practice guidelines and strategies for adoption by Early Childhood Intervention practitioners, with a focus on trans disciplinary or collaborative team approach

ii) The provision of advice on resources for families and provider detailing the entry points to NDIA and tools to support engagement

For more information please contact:

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Published Date: 

9 December 2014