The NDIA is committed to developing partnerships with academic institutions and research bodies to drive and shape the disability research agenda.
Services we offer on request include:
- Access to tailored NDIS data (summary or de-identified individual-level data)
- Access to NDIA staff (employees, contractors and volunteers) as:
- study subjects in research; or
- project team members, steering committee experts, working parties or similar
- Collaboration or partnership on research or evaluation
For more information, please refer to the External Researcher Request Policy:
Accessing NDIS data
The NDIA has data publicly available on our Data and insights page.
For information about NDIS data sharing for research, please review the NDIS Public Data Sharing Policy .
This document explains:
- the type of data we share
- what data is not available
- the principles of NDIS data
- why data sharing is important
- how to gain access to NDIS data
If you are requesting access to individual level data, please read the Cyber security requirements:
- Information about Cyber Security requirements (PDF 314KB)
- Information about Cyber Security requirements (DOCX 48KB)
Making a research request
For access to tailored summary-level NDIS data:
For access to tailored de-identified individual-level NDIS data, NDIA staff, or to request a collaboration or partnership with the NDIA:
Your duties as a researcher:
- Follow the Australian Code for the Responsible Conduct of Research and the National Statement on Ethical Conduct in Human Research.
- Make sure all data and information is used confidentially so that privacy is maintained according to the Privacy Act 1988 (Cth).
- Other than information in the public domain, you do not disclose—except to the NDIA—any confidential information relating to the Agreement or the Research Project without written approval from the NDIA.
- Ensure all ethical, administrative and governmental approvals relating to the Research Project are in place before commencing. These approvals, if required, must be provided to the NDIA upon request.
- Provide a Final Project Closure Report to the NDIA on completion.
For more information on the use of NDIA tailored data, please read our full terms and conditions:
- Terms and conditions for the provision of aggregated or summary data for the purposes of research (PDF 712 KB)
- Terms and conditions for the provision of aggregated or summary data for the purposes of research (DOCX 185KB)
Current partnerships and approved requests
Approved external research requests are listed in the summary log:
Some of our current collaborations include working with:
- Cerebral Palsy Alliance and University of Sydney to develop a resource to improve outcomes for children living with cerebral palsy. The TRANSMIT (a multifaceted knowledge TRANslation Strategy iMprovIng funcTion in children and youth with cerebral palsy) project is funded through the National Health and Medical Research Council (NHMRC) Partnerships for Better Health. This project will develop a mobile health aid that will help parents and carers of children living with cerebral palsy to better understand and access evidence-based supports.
- ARIA Research to design clinical trials and measurement tools for their non-invasive bionic vision system. This will deliver a form of technologically enhanced human echolocation that enables blind users to perceive their surroundings.